I will start with Monday, Sept 22nd 2014 as this was her 77th birthday.
As I walk into her room I have in hand three different desserts from one of her favorite cafeteria's. A chocolate meringue pie, custard and a white cake with chocolate icing. Coincidentally, I like these desserts too. Now, knowing that my mom can only eat pureed or soft foods, the pie and custard were going to be easy to feed her. I had to mix the cake in milk, but I actually mixed it with the custard and pie too. I split all of the desserts in half and shared it with the staff because my mom would not have been able to eat it all.
My mom looks so different from her birthday last year, almost a shell of herself. It makes me tremendously sad to see her this way. She has not focused on me or anything in a long time. She just has a blank stare or her eyes are closed. The picture on the top right was from last year and bottom left is from this year. What a change, so please take this as a warning that this is what will happen with your loved one as the disease progresses.
I also have a card for her. Not sure why we do this. Why we feel the need to buy gifts or get cards for someone who doesn't even know they are there. I think we do this more to make ourselves feel better.
The nursing home has put a sign on her door that reads "Happy Birthday" and they brought some balloons. I was glad they did that because balloons are just a happy thing, always associated with happy occasions.
Mom ate her desserts well and even ate most of her lunch afterwards. Yes I fed her desserts before lunch. lol
Mom is getting worse, there is no cure for this disease and it is evident why it's called the longest goodbye.
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